Changing Times

Josh is beginning to drift away.  He sleeps till noon and then sits for about an hour and then goes back to sleep.  If we are lucky we get a couple of hours at dinner time and then he is back to sleep.  He can no longer stand without assistance.  Activities out of the house are not possible now and we are asking that if you want to visit please call first to see how he is doing.   He still wants to see people but we don't want to stress him now.  We think he still has a little time because his vitals are stable and he is still eating but that time is short and we will keep you posted as it moves forward.

We are grateful for all the fun we have had and the memories we have made in the last 2 months.  We feel the love of so many people and especially the love of our Heavenly Father.  We are as ready as we can be to begin this new part of the journey.  We plan to take it one day at a time and let Josh lead us.  We have talked to him about the next steps and given him our blessing to go and we are listening to the spirit for guidance.  I know that our Savior is close as we move forward. 

I have a testimony that God loves our family and has a plan for Joshua.  I am so grateful to be his mother and walk with him on his journey.  I will never be the same but I pray to be better because of him.  I also pray that the many people he continues to touch will feel the same and come closer to Heavenly Father.  In a world of hate and anger I want everyone to learn to love like Joshua does, simple and pure.

Please come visit if you can and we will be glad to see you.  480-720-9856

Highs and Plateaus

     Well I am not sure what to say today.  So much has happened but nothing has changed.  We have had some really high moments in the last several weeks.  We went on a helicopter ride and horseback riding and even got to ride in a side car with the coolest bikers ever to Antelope Island.  We have been to 2 more temples to do baptisms (Logan and Provo City Center).  We loved everything we have done and it has been amazing.  The highlight for Josh was a visit from a member of the seventy, for our friends that don't belong to our church that is a general authority.  He was sent by our prophet to visit our family and Joshua.  As a mother I can only say I am proud because I could see how impressed he was with Joshua and his love of the gospel.  It was a powerful visit and we were left with a strong sense of love and support from our church.  He gave Josh and Gordon and Ted ties.  They are a solid color and have what appear to be dots on them.  When you look closer they have panda bears all over them.  Elder Sabin says no one can be unhappy with a panda.
     On the other side of the coin we are unchanged healthwise.  He is very tired and confused sometimes.  He is just going day by day.  We have increased his medicine to help with some pain he is having.  His legs hurt at night and he is getting more anxious so we added meds to help with both and he is doing well.
     I sometimes wonder as his mother about the purpose of this time.  I don't want him to suffer and I know he is ready but I see the work he is doing here now.  He rarely goes anywhere without touching someone.  I see that others still need him and so do we so I am grateful for this time.  I am grateful for the tender mercies of the Lord, I see how all this is all working for a purpose so I am trying to be patient and see where it leads us.  We are sooo grateful for the friends we are making and have already around us.  We have been getting letters and gifts for Josh from around the world from our wonderful biker friends and they make me cry.  Josh loves it and in the end that is all that really matters.  Please go hug your families and do something they want to do that you think you don't have time for.  As Josh would say - Have At It!